A young, 19-year-old girl has just died in what many are describing as a deeply ‘disturbing’ case involving Britain’s government-funded National Health Service (NHS), the Christian Post reports.

Sudiksha Thirumalesh, 19, suffered from a rare genetic mitochondrial disease that resulted in the weakening of her muscles and kidney damage that required daily dialysis. She and the family wanted to go to Canada for an experimental nucleoside treatment.

However, a hospital in Britain’s NHS along with a British court prevented the Christian family from seeking care for their daughter’s serious medical condition outside the country, after the hospital discontinued Sudiksha’s life-saving treatments.

The family was fully prepared to pay for the Canadian procedure, and the NHS even used the court to stop the family from trying to fundraise money for their daughter.

As the case was being tried, the NHS also stopped the family from revealing their name or the name of their daughter and the hospital involved.

Before their daughter died, the family had spent all its lifesaving on court battles trying to free their daughter from the NHS’s death grip.

In a statement made after their daughter’s death, the family said:

“We are deeply disturbed by how we have been treated by the hospital trust and the courts. Had she been allowed to seek nucleoside treatment six months ago, it may well be that she would still be with us and recovering.

“We are a Christian family who believe in life, love and forgiveness.”

READ: Teen dies after court blocked her from seeking treatments; family speaks out